Yesterday we went to Children's Hospital for Comforts first visit. How wonderful they are! I called them from Ghana on Friday while we were waiting for our flight and they scheduled us to come right in on Tuesday morning (Monday being a holiday). The doctors were all excited to see Comfort and really interested in her. The condition that she has is usually diagnosed early in the states and surgically repaired before it progresses to this stage, so it was very interesting for them to see it at such an advanced stage. The defect that she has is an obstruction of the outflow of blood from her heart going to her lungs. Because of this obstruction her heart muscle has to work extra hard to squeeze the blood through the restricted opening, this in turn has thickened and enlarged the heart muscle (think of what lifting weights does for your arm muscles) which causes the obstruction to become more restricted. Without surgery, eventually it would have completely obstructed and she would not have survived, which probably would have been soon from what it looked like. We also found out that because her heart has become so large it has moved her liver 3 inches lower than normal. She really did need to get here to have medical care. The doctors were so surprised at how advanced it was.
The prognosis is good though. The doctor is meeting with the surgical team to plan her surgery and then they will open her chest and fix the obstruction and remove the enlarged tissue from the heart and that will allow her liver to move back into a normal position. We were told that she sould have a completely normal life.
The doctors were so great. They were also very attentive and interested in her case. they kept coming in and talking about her and looking at the monitors. I think they were really excited.
Comfort was so funny. She was really worried that we would be going to a hospital like the one in Ghana and the first thing she said when we left was "Mom, that hospital was really nice". Isn't that funny that she would even process that? Maybe it was the teddy bear, stickers and movie? Oh, and the really cool thing was we met Kristin http://thejagfam.blogspot.com/ and her kids while we were at Children's. How cool!!!
After our taxing day at Children's we took our little princess to lunch. What a contrast. 3 weeks ago she was living in an orphanage struggling to survive in the heat and now here she was sitting in a waterfront restaurant eating calamari and loving every minute of it.
Brian and Josephine are also doing great. Everyone is sleeping well, eating great and seem to be adjusting really well. We are all happy to be together finally. It was a long wait!
Lanae
4 years ago
7 comments:
It's so great to hear that she will be able to lead a normal life. We both fell in love with Comfort while at Luckyhill!!! What a doll! We just take for granted the excellent medical care we receive here in the States. We will keep following your blog to see how things progress. God bless you and your family!
What fabulous news! Welcome back! I am so glad to hear that her heart condition can be fixed with such a great prognosis!
I love Kristin, I am so glad it worked out that you got to meet up!
Jennine
I am glad to hear the good news! Praise the Lord!
Also, I am posting this on the blogs I follow:
Because I am leaving a comment on your page, that means I am a “follower” of your story I am not a random person just posting for posting sake.
I don’t know if this breaks blog etiquette or something. But I am risking it anyway.
I have posted a blog called “Extreme Makeover: Jesus Edition” about a family that needs our help.
Go, read, if you feel led.
Side note: for you adoption/foster advocates, there is another post that is “messing” with me if you care to check it out and comment. It is the previous post and it is called “Living Freely: Foster Care and THE CHURCH”
Hear my heart fellow bloggers, I am seeking nothing selfishly. Just trying to do the will of the ONE who sent me. Praise the Lord!
I've been following your journey on the AdoptingfromGhana eloop. How wonderful that you are home and Comfort is getting the medical care she needs. I didn't comment, but was praying for you and Laurel as you traveled and for Comfort as she waited to come home.
It was wonderful to visit the other day. Oh how I love her. she has been watched over and prayed over. she is a miracle!
Love the new header picture for you blog! What a beautiful family!
Jennine
I have been praying for Comfort and your family. She is such a sweet girl! I just read Laurel's blog and will pray that all goes well with the surgery.
Ginny
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